Sometimes joining a psoriasis forum is a great
way to connect with others who are also dealing with psoriasis. Not only can
you find a lot of support, share ideas about what treatments are proving
beneficial and which are not, but you can also make friends.
Probably the only real drawback to a
psoriasis forum or any forum where people suffering from similar conditions gather
is the prevalence of diagnosis and treatments being suggested by those with no
medical training. That’s not to say that experience can’t play a role, but be
wary of just taking the word of someone with no training about some new and as
yet, unproven treatment.
What to Look for in a Psoriasis Group
A few things that I look for when I’m
looking to join a group or forum about any type of issue are:
- How many in the group – the
smaller the group, the less likely that it will be very active and the less
opportunity to get enough feedback
- What’s the date of the most
recent posts? If the last post or question posed was six months ago, or even a
month ago, then chances are the group is starting to wane and you’ll not
benefit from joining the group.
- What are the group rules? Learn
them and follow them.
- Are posts monitored? Glance
through previous posts and see if you spot any spam or people trying to sell
you something. If you see any, it may mean that the owner of the forum or the
group is not in evidence and is no longer monitoring the group.
chronic plaque psoriasis
Where to find a Psoriasis Forum?
You can do a quick search for “psoriasis groups”, you can also search Facebook groups using the key
phrase “psoriasis” and you’ll be sure to find several that might suit. Here are
just a few forums and groups that we found.
- Psoriasis Support
Group – located on the Drug.com website, with 213 members, and the most
active post about two weeks ago.
Forums – part of the Psoriasis-Association.com.uk website, actually
includes forums focusing on four different areas: Psoriasis Experiences,
Treatments, Psoriatic Arthritis, and a General Chat Forum. One must register to
actually see any posts, but the group appears to have several posts in the last
- Talk Psoriasis – is a
psoriasis and psoriatic arthritis support group and discussion community
located on the Inspire.com website. It appears that there are currently over
121,000 members of the community, and the most recent posts have been in the
last few days.
- Psoriasis Club – at psoriasisclub.org is
divided into several discussion “boards”, such as Psoriasis Topics and News,
Prescribed Treatments for Psoriasis, and Natural Treatments for Psoriasis; and
those are the boards available to non-members. They also have members-only
boards, which require one to become a registered member to access. Currently
there are fewer than 1,000 members and the group appears to be quite active.
Facebook Psoriasis Groups
Facebook is probably where you are going to
find the most active psoriasis forum or groups. A simple search of “psoriasis”
in groups turned up an amazing number of groups covering all types of topics
with memberships ranging from less than 30 to over 18,000.
Some of the groups are open, meaning that
you do not have to be a member to read the posts, while most of them appear to
be closed groups. The one caution about open groups is that they are often full
of spam and not monitored very well, if at all.
You can also check out Yahoo Groups and
search for “psoriasis” and you may find a psoriasis forum or two. However, it
appears that the trend in support groups is moving more and more to Facebook.
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